11 Apr 2023

Calls for a national register for advance care directives

From Nine To Noon, 9:05 am on 11 April 2023
A medical staff takes care of a non-Covid-19 patient in the intensive care unit of the Emile Muller hospital in Mulhouse, eastern France, on July 23, 2021. (Photo by SEBASTIEN BOZON / AFP)

Photo: AFP

Louise Duffy's mother had an advance directive, or living will, which stated she did not wish to be treated if she had severe loss of physical or mental capacity. 

But when she suffered a severe stroke, Louise says medical staff ignored her mother's wishes, and continued treatment. Her mother, Barbie Duffy died 58 days later, after refusing food and, finally, fluids.

Louise Duffy has started a petition, calling for a national register of advanced directives, to strengthen current systems and give plans and people more certainty.

She tells her mother's story to Susie Ferguson, who also speaks with Nick Laing, medico-legal lawyer with Duncan Cotterill in Nelson.